USC Subpart 5

USC Subpart 5
in effect

42 U.S.C. § 285e Purpose of Institute

The general purpose of the National Institute on Aging (hereafter in this subpart referred to as the “Institute”) is the conduct and support of biomedical, social, and behavioral research, training, health information dissemination, and other programs with respect to the aging process and the diseases and other special problems and needs of the aged.

42 U.S.C. § 285e–1 Special functions

(a) Education and training of adequate numbers of personnelIn carrying out the training responsibilities under this chapter or any other Act for health and allied health professions personnel, the Secretary shall take appropriate steps to insure the education and training of adequate numbers of allied health, nursing, and paramedical personnel in the field of health care for the aged. (b) Scientific studiesThe Director of the Institute shall conduct scientific studies to measure the impact on the biological, medical, social, and psychological aspects of aging of programs and activities assisted or conducted by the Department of Health and Human Services. (c) Public information and education programsThe Director of the Institute shall carry out public information and education programs designed to disseminate as widely as possible the findings of research sponsored by the Institute, other relevant aging research and studies, and other information about the process of aging which may assist elderly and near-elderly persons in dealing with, and all Americans in understanding, the problems and processes associated with growing older. (d) Grants for research relating to Alzheimer’s DiseaseThe Director of the Institute shall make grants to public and private nonprofit institutions to conduct research relating to Alzheimer’s Disease.

42 U.S.C. § 285e–2 Alzheimer’s Disease centers

(a) Cooperative agreements and grants for establishing and supporting(1) The Director of the Institute may enter into cooperative agreements with and make grants to public or private nonprofit entities (including university medical centers) to pay all or part of the cost of planning, establishing, or strengthening, and providing basic operating support (including staffing) for centers for basic and clinical research (including multidisciplinary research) into, training in, and demonstration of advanced diagnostic, prevention, and treatment methods for Alzheimer’s disease. (2) A cooperative agreement or grant under paragraph (1) shall be entered into in accordance with policies established by the Director of NIH and after consultation with the Institute’s advisory council. (b) Use of Federal payments under cooperative agreement or grant(1) Federal payments made under a cooperative agreement or grant under subsection (a) may, with respect to Alzheimer’s disease, be used for—(A) diagnostic examinations, patient assessments, patient care costs, and other costs necessary for conducting research; (B) training, including training for allied health professionals; (C) diagnostic and treatment clinics designed to meet the special needs of minority and rural populations and other underserved populations; (D) activities to educate the public; and (E) the dissemination of information. (2) For purposes of paragraph (1), the term “training” does not include research training for which Ruth L. Kirschstein National Research Service Awards may be provided under section 288 of this title. (c) Support period; additional periodsSupport of a center under subsection (a) may be for a period of not to exceed five years. Such period may be extended by the Director for additional periods of not more than five years each if the operations of such center have been reviewed by an appropriate technical and scientific peer review group established by the Director and if such group has recommended to the Director that such period should be extended.

42 U.S.C. § 285e–3 Claude D. Pepper Older Americans Independence Centers

(a) Development and expansion of centersThe Director of the Institute shall enter into cooperative agreements with, and make grants to, public and private nonprofit entities for the development or expansion of not less than 10 centers of excellence in geriatric research and training of researchers. Each such center shall be known as a Claude D. Pepper Older Americans Independence Center. (b) Functions of centersEach center developed or expanded under this section shall—(1) utilize the facilities of a single institution, or be formed from a consortium of cooperating institutions, meeting such research and training qualifications as may be prescribed by the Director; and (2) conduct—(A) research into the aging processes and into the diagnosis and treatment of diseases, disorders, and complications related to aging, including menopause, which research includes research on such treatments, and on medical devices and other medical interventions regarding such diseases, disorders, and complications, that can assist individuals in avoiding institutionalization and prolonged hospitalization and in otherwise increasing the independence of the individuals; and (B) programs to develop individuals capable of conducting research described in subparagraph (A). (c) Geographic distribution of centersIn making cooperative agreements and grants under this section for the development or expansion of centers, the Director of the Institute shall ensure that, to the extent practicable, any such centers are distributed equitably among the principal geographic regions of the United States. (d) “Independence” definedFor purposes of this section, the term “independence”, with respect to diseases, disorders, and complications of aging, means the functional ability of individuals to perform activities of daily living or instrumental activities of daily living without assistance or supervision.

42 U.S.C. § 285e–4 Awards for leadership and excellence in Alzheimer’s disease and related dementias

(a) Senior researchers in biomedical researchThe Director of the Institute shall make awards to senior researchers who have made distinguished achievements in biomedical research in areas relating to Alzheimer’s disease and related dementias. Awards under this section shall be used by the recipients to support research in areas relating to such disease and dementias, and may be used by the recipients to train junior researchers who demonstrate exceptional promise to conduct research in such areas. (b) Eligible centersThe Director of the Institute may make awards under this section to researchers at centers supported under section 285e–2 of this title and to researchers at other public and nonprofit private entities. (c) Required recommendationThe Director of the Institute shall make awards under this section only to researchers who have been recommended for such awards by the National Advisory Council on Aging. (d) Selection proceduresThe Director of the Institute shall establish procedures for the selection of the recipients of awards under this section. (e) Term of award; renewalAwards under this section shall be made for a one-year period, and may be renewed for not more than six additional consecutive one-year periods.

42 U.S.C. § 285e–5 Research relevant to appropriate services for individuals with Alzheimer’s disease and related dementias and their families

(a) Grants for researchThe Director of the Institute shall conduct, or make grants for the conduct of, research relevant to appropriate services for individuals with Alzheimer’s disease and related dementias and their families. (b) Preparation of plan; contents; revision(1) Within 6 months after November 14, 1986, the Director of the Institute shall prepare and transmit to the Chairman of the Council on Alzheimer’s Disease (in this section referred to as the “Council”) a plan for the research to be conducted under subsection (a). The plan shall—(A) provide for research concerning—(i) the epidemiology of, and the identification of risk factors for, Alzheimer’s disease and related dementias; and (ii) the development and evaluation of reliable and valid multidimensional diagnostic and assessment procedures and instruments; and (B) ensure that research carried out under the plan is coordinated with, and uses, to the maximum extent feasible, resources of, other Federal programs relating to Alzheimer’s disease and related dementias, including centers supported under section 285e–2 of this title, centers supported by the National Institute of Mental Health on the psychopathology of the elderly, relevant activities of the Administration on Aging, other programs and centers involved in research on Alzheimer’s disease and related dementias supported by the Department, and other programs relating to Alzheimer’s disease and related dementias which are planned or conducted by Federal agencies other than the Department, State or local agencies, community organizations, or private foundations. (2) Within one year after transmitting the plan required under paragraph (1), and annually thereafter, the Director of the Institute shall prepare and transmit to the Chairman of the Council such revisions of such plan as the Director considers appropriate. (c) Consultation for preparation and revision of planIn preparing and revising the plan required by subsection (b), the Director of the Institute shall consult with the Chairman of the Council and the heads of agencies within the Department. (d) Grants for promoting independence and preventing secondary disabilitiesthe 11 So in original. Probably should be capitalized. Director of the Institute may develop, or make grants to develop—(1) model techniques to—(A) promote greater independence, including enhanced independence in performing activities of daily living and instrumental activities of daily living, for persons with Alzheimer’s disease and related disorders; and (B) prevent or reduce the severity of secondary disabilities, including confusional episodes, falls, bladder and bowel incontinence, and adverse effects of prescription and over-the-counter medications, in such persons; and (2) model curricula for health care professionals, health care paraprofessionals, and family caregivers, for training and application in the use of such techniques. (e) “Council on Alzheimer’s Disease” definedFor purposes of this section, the term “Council on Alzheimer’s Disease” means the council established in section 11211(a) 22 See References in Text note below. of this title.

42 U.S.C. § 285e–6 Dissemination of research results

The Director of the Institute shall disseminate the results of research conducted under section 285e–5 of this title and this section to appropriate professional entities and to the public.

42 U.S.C. § 285e–7 Clearinghouse on Alzheimer’s Disease

(a) Establishment; purpose; duties; publication of summaryThe Director of the Institute shall establish the Clearinghouse on Alzheimer’s Disease (hereinafter referred to as the “Clearinghouse”). The purpose of the Clearinghouse is the dissemination of information concerning services available for individuals with Alzheimer’s disease and related dementias and their families. The Clearinghouse shall—(1) compile, archive, and disseminate information concerning research, demonstration, evaluation, and training programs and projects concerning Alzheimer’s disease and related dementias; and (2) annually publish a summary of the information compiled under paragraph (1) during the preceding 12-month period, and make such information available upon request to appropriate individuals and entities, including educational institutions, research entities, and Federal and public agencies. (b) Fee for informationThe Clearinghouse may charge an appropriate fee for information provided through the toll-free telephone line established under subsection (a)(3).11 So in original. No subsec. (a)(3) has been enacted. (c) Summaries of research findings from other agenciesThe Director of the Institute, the Director of the National Institute of Mental Health, and the Director of the National Center for Health Services Research and Health Care Technology Assessment shall provide to the Clearinghouse summaries of the findings of research conducted under part D.

42 U.S.C. § 285e–8 Dissemination project

(a) Grant or contract for establishmentThe Director of the Institute shall make a grant to, or enter into a contract with, a national organization representing individuals with Alzheimer’s disease and related dementias for the conduct of the activities described in subsection (b). (b) Project activitiesThe organization receiving a grant or contract under this section shall—(1) establish a central computerized information system to—(A) compile and disseminate information concerning initiatives by State and local governments and private entities to provide programs and services for individuals with Alzheimer’s disease and related dementias; and (B) translate scientific and technical information concerning such initiatives into information readily understandable by the general public, and make such information available upon request; and (2) establish a national toll-free telephone line to make available the information described in paragraph (1), and information concerning Federal programs, services, and benefits for individuals with Alzheimer’s disease and related dementias and their families. (c) Fees for information; exceptionThe organization receiving a grant or contract under this section may charge appropriate fees for information provided through the toll-free telephone line established under subsection (b)(2), and may make exceptions to such fees for individuals and organizations who are not financially able to pay such fees. (d) Application for grant or contract; contentsIn order to receive a grant or contract under this section, an organization shall submit an application to the Director of the Institute. Such application shall contain—(1) information demonstrating that such organization has a network of contacts which will enable such organization to receive information necessary to the operation of the central computerized information system described in subsection (b)(1); (2) information demonstrating that, by the end of fiscal year 1991, such organization will be financially able to, and will, carry out the activities described in subsection (b) without a grant or contract from the Federal Government; and (3) such other information as the Director may prescribe.

42 U.S.C. § 285e–9 Alzheimer’s disease registry

(a) In generalThe Director of the Institute may make a grant to develop a registry for the collection of epidemiological data about Alzheimer’s disease and its incidence in the United States, to train personnel in the collection of such data, and for other matters respecting such disease. (b) QualificationsTo qualify for a grant under subsection (a) an applicant shall—(1) be an accredited school of medicine or public health which has expertise in the collection of epidemiological data about individuals with Alzheimer’s disease and in the development of disease registries, and (2) have access to a large patient population, including a patient population representative of diverse ethnic backgrounds.

42 U.S.C. § 285e–10 Aging processes regarding women

The Director of the Institute, in addition to other special functions specified in section 285e–1 of this title and in cooperation with the Directors of the other national research institutes and agencies of the National Institutes of Health, shall conduct research into the aging processes of women, with particular emphasis given to the effects of menopause and the physiological and behavioral changes occurring during the transition from pre- to post-menopause, and into the diagnosis, disorders, and complications related to aging and loss of ovarian hormones in women.

42 U.S.C. § 285e–10a Alzheimer’s clinical research and training awards

(a) In generalThe Director of the Institute is authorized to establish and maintain a program to enhance and promote the translation of new scientific knowledge into clinical practice related to the diagnosis, care and treatment of individuals with Alzheimer’s disease. (b) Support of promising cliniciansIn order to foster the application of the most current developments in the etiology, pathogenesis, diagnosis, prevention and treatment of Alzheimer’s disease, amounts made available under this section shall be directed to the support of promising clinicians through awards for research, study, and practice at centers of excellence in Alzheimer’s disease research and treatment. (c) Excellence in certain fieldsResearch shall be carried out under awards made under subsection (b) in environments of demonstrated excellence in neuroscience, neurobiology, geriatric medicine, and psychiatry and shall foster innovation and integration of such disciplines or other environments determined suitable by the Director of the Institute.

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